Happy New Year everyone! I’m usually too lazy to make New Years resolutions so I just end up with some vague intentions floating around my head like “learn new things” or “limit chocolate intake to one pound per day”. This year is off to a smashing start because it’s only two days old and I’ve already learned something totally exciting and new: how to inject myself with drugs.
OK, it’s only intramuscular B12 so it’s not that scandalous. However, it still felt pretty badass the first time I gave myself a dose on my own.
It’s taking a while to get my next set of doctors’ appointments because of people being on vacation. From what my neurologist said, though, it’s imperative that I start heavy B12 supplementation as soon as I can. Some of my friends have been prescribed B12 shots in the past and were generous enough to hook me up with the necessary supplies and show me the process. I’m extremely happy for anything that helps me get better faster. Also, I hope I can convince my doc to keep letting me do my own shots instead of going into the clinic every day.
The lumbar puncture is coming up soon though getting it scheduled has been a huge bureaucratic mess. I love the doctors at the place I’ve been going but there have been lots of issues untangling the complex web of the different offices that make up the overall medical complex. A lot more of this burden is placed on the patient than I would expect.
Health continues to have its ups and downs… hands and legs are almost completely normal now but my Lhermitte’s Sign symptoms have suddenly gotten much worse and I’ve rolled into another cycle of bad insomnia. Lhermitte’s Sign is the one where tilting my head forward sends electrical-shock feelings down my back and legs. At first the intensity and duration of the shocks were pretty low but now if I move my head quickly it feels like my entire midsection is plugged into a wall outlet. It might go away if my neural damage reverses itself but it might stay – it’s too soon to tell. In any case, I’m trying to train myself not to look down. So, if the next time I see you it seems like I’m sticking my nose in the air, please understand that it’s not you, it’s me.
